Wednesday, January 21, 2009

Sorry for keeping you on pins and needles with no update.

The meeting with the Chief went well. I'm glad he's not our normal GI (very arrogant) but I got my concerns addressed and my questions answered which is all that really matters.

He already added on an endoscopy for tomorrow. I'm glad. I don't wanna have to sedate her more than once. Her biopsies will be tested for Hirchsprung's, Celiac, Eosinophilic Gastroenteritis and Colitis, and allergy inflammation. She will be given a saline enema at the hospital since she reacted to the one last week. Only anesthesia can answer our questions as to how they will put her out because she's violently allergic to soy and most likely egg. Only anesthesia can answer if she'll have to stay longer to be monitored. It should take 3 business days to get the biopsy results back. If the biopsies don't show anything, which he thinks they'll show at least allergy inflammation, then we'll just keep our appointment on 2-2 with their motility specialist, Dr. Cocjin, and talk about motility studies/scans then. (A motility problem is when the muscles in your stomach don't contract as they're supposed to to move the food along the GI tract.)

Yesterday was rough in general and I know today will be no different. El's appointment was at 1pm yesterday, and her nap is at 12:30. So needless to say she didn't sleep but one hour for her afternoon nap once we got home. Talk about cranky! She cried herself to sleep (which she hasn't done in a long, long time) and woke this morning at 5:30 crying. We tried to comfort her but she didn't want anything so we just left her. I couldn't go back to sleep so here I am! She can't have anything to eat until this afternoon. She can have Pedialyte until 8:45am but I don't think she'll be too happy with that. Oh well...

I'll keep you posted!

3 comments:

Molly Flanagan said...

No wonder you haven't been on BBC recently! I hope things are resolved with your LO soon! Sounds so, so sad. (BTW this is pinkgoldfish from BBC... I added you to my blog reader!) :-)

Brittney said...

I know who you are, silly!

Molly Flanagan said...

oh... well... i get confused about all of this blog stuff. i still haven't figured it out. ;-)